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Living with a glomus jugulare tumour

These are rare, slow-growing, very vascular tumours of a group called paragangliomas. They are derived from glomera jugulare (or glomus bodies) which themselves are derived from neural tissue and arise within the jugular foramen of the temporal bone -Rare tumour (the annual incidence is around 1 in 1.3 million people per year) -They tend to present between 40 and 70 years of age (range: 6 months to 88 years) -There is a female preponderance of between 3 and 6:

Thursday, April 29, 2010

Why am I doing this?

When I was told I had a glomus jugulare tumour, I scoured the Internet to hear about peoples experience with these rare tumours and found out there really isn't much information out there. I've decided to try and document my thoughts, feelings and the way I got to the recovery bed.

I'll try and add some MRI pictures and other useful information (Doctors, hospitals etc) as I work on this.
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1 comment:

  1. UnknownDecember 30, 2016 at 10:46 AM

    Any progress on this? I've had a glomus tumour in my right knee since 1982 - nothing can be done.

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